Alisha Jilani Foundation
Special Thanks To
"I can't even imagine"
Words so often that I'm told
Yet we live it everyday
Filled with courage oh so bold
But even mountains break asunder
When the ground underneath them shakes
What are we but human
When the world around us breaks...
In honour of our beloved baby girl, Alisha Noor Jilani, who passed away this day last week, we are raising funds to ease the suffering of others going through the journey of childhood cancer treatment.
How You Can Help
This is an evolving campaign and the goal is to support each of the organizations that helped support us during our time of need.
The first campaign was focusing on sponsoring a room at the Ronald McDonald House (RMH) so we can support other families that need to move away from their homes to get treatment for their child. We have acheived that goal.
Our next goal, which is our current campaign, is to raise money for Camp Ooch. Camp Ooch helped us through this journey and are facing reduced donations due to COVID-19. They are truly a significant resource that needs support.
Learn more about The Alisha Jilani Foundation below:
In May 2019, shortly after her first birthday, Alisha was diagnosed with a rare and aggressive brain cancer called ATRT. For her treatment, we moved from our home in London ON to Toronto for six months and stayed at the Ronald McDonald House. Camp Ooch provided us with support, which was an invaluable resource for us. They brought a smile upon both our daughters' faces. They also provided many resources for our older daughter.
During Alisha's treatment at SickKids hospital, she underwent numerous brain surgeries and some of the harshest chemo regiments that can be administered on children, including high-dose chemo and bone marrow transplant. In December 2019, her treatment at SickKids came to an end and we came back home.
Two weeks later, her tumour came back.
This time, Alisha's treatment resumed at London's Children's Hospital. Alisha was happiest at home and all efforts were directed to ensure that we, as her parents, were equipped to manage her care whenever she wasn't going through active chemo treatment in hospital. Despite this, she needed blood transfusions once a week, every week, for six months. As COVID19 gripped the world, hospitals became an incredibly isolating experience.
Our little soldier fought on through thick and thin but the course of treatment eventually took a toll on her little body and she passed away shortly after her second birthday.
Her fighting spirit however lives on in the impact she's had on the countless people who heard about her journey.
This Foundation will be her Legacy.
Alisha Noor Jilani (May 4, 2018 - June 2, 2020)
Camp Ooch gives kids affected by childood cancer the chance to just be kids
Ooch is a year-round social support system for kids affected by childhood cancer and their families. Your donations will help us bring the healing power of fun, friendship and self-confidence to kids wherever they are in their cancer journey; from hospital beds and waiting rooms, to campfires and overnight canoe trips and more.
Ooch changes the lives of over 1,600 kids affected by childhood cancer every single year, at no cost to their families. But almost 80% of kids with cancer in Ontario don’t have access to the wonders of camp.
Together, we can help change that. You generous support will help to build more friendships, connect more families, and create more joy for kids affected by childhood cancer in communities across Ontario.
Thank you for being an important part of the Magic of Ooch.